Видео ютуба по тегу Rared Disease

Meet Vincent Pons | Lead scientist at the JAX Rare Disease Translational Center
Meet Vincent Pons | Lead scientist at the JAX Rare Disease Translational Center
Video Podcast One in a Million: Blakelee’s Journey w/ Rare Disease & Resilience w/ Dr. Latasha Holt
Video Podcast One in a Million: Blakelee’s Journey w/ Rare Disease & Resilience w/ Dr. Latasha Holt
Baby with incredibly rare syndrome recovers from stem cell transplant, parents never leave his side
Baby with incredibly rare syndrome recovers from stem cell transplant, parents never leave his side
What’s Next in Rare Disease Data Collection and Clinical Use - NORD Scientific Symposium
What’s Next in Rare Disease Data Collection and Clinical Use - NORD Scientific Symposium
Meet Rajat Puri | Lead scientist at the JAX Rare Disease Translational Center
Meet Rajat Puri | Lead scientist at the JAX Rare Disease Translational Center
Rare diseases film aims to raise awareness
Rare diseases film aims to raise awareness
Meet Max Presa | Lead scientist at the JAX Rare Disease Translational Center
Meet Max Presa | Lead scientist at the JAX Rare Disease Translational Center
Paving Regulatory Pathways in Rare Disease
Paving Regulatory Pathways in Rare Disease
Episode #43 | My Journey with Wilson Disease | Rare Info Series
Episode #43 | My Journey with Wilson Disease | Rare Info Series
The London Rare Disease Showcase 2023
The London Rare Disease Showcase 2023
Hot Springs boy with rare disease needs lifesaving transplant
Hot Springs boy with rare disease needs lifesaving transplant
The Rare Autoimmune Condition Scleroderma: Clinician and Patient Insights
The Rare Autoimmune Condition Scleroderma: Clinician and Patient Insights
Rare Disease Day 2022 | Simons Searchlight and SPARK voices
Rare Disease Day 2022 | Simons Searchlight and SPARK voices
Canadian Rare Disease Symposium 2025 | Part II: Preparing for Clinical Trials
Canadian Rare Disease Symposium 2025 | Part II: Preparing for Clinical Trials
Скрининг модельных организмов в диагностике редких генетических заболеваний – лекция Рональда Лемира
Скрининг модельных организмов в диагностике редких генетических заболеваний – лекция Рональда Лемира
Supporting a two-year-old with a rare genetic condition - Ava’s Story
Supporting a two-year-old with a rare genetic condition - Ava’s Story
SPARK & Simons Searchlight Celebrate Rare Disease Day 2022
SPARK & Simons Searchlight Celebrate Rare Disease Day 2022
Rare Disease Day 2017
Rare Disease Day 2017
Funding Rare Disease Research
Funding Rare Disease Research
Rare Disease Day 2025
Rare Disease Day 2025
Genomics of Rare Disease 24 | Keynote by Associate Professor Timothy Yu, Harvard Medical School, USA
Genomics of Rare Disease 24 | Keynote by Associate Professor Timothy Yu, Harvard Medical School, USA
Rare Disease Day: David's story
Rare Disease Day: David's story
Rare Disease Day: Peter Frampton
Rare Disease Day: Peter Frampton
A Mom's Journey to Understand Her Daughter's Rare Disease
A Mom's Journey to Understand Her Daughter's Rare Disease
Genomics of Rare Disease 2025 | Keynote by Stephen Kingsmore, Rady Children's Institute, USA
Genomics of Rare Disease 2025 | Keynote by Stephen Kingsmore, Rady Children's Institute, USA